THE DATA

Does Datarwe sell data? Can I buy data?

Datarwe does not sell data. We are hosting de-identified healthcare data from our CDN ecosystem participants. The data providers keep control on who can access their data.

What data does Datarwe have?

Datarwe’s Clinical Data Nexus contains wide and deep enriched, labelled, de-identified patient hospital data sets ready to use in Datarwe’s workbench with a suite of tools for deep analytics and AI/ML tool development.

To have more information about the type of data we have, you can download our data catalogue here: Download Datarwe Data Catalogue.

How can I access the data?

You can access the data by becoming a Clinical Data Nexus healthcare ecosystem participant. The CDN participants are connected with other hospitals, researchers, clinicians and product developers and can access research-ready, enriched real world clinical data through our CDN.

To become a CDN participant, you can contact us.

Who has data ownership?

The data providers are the custodians of their data. They keep the ownership and maintain control of their data. Data sharing remains under control of the data custodians at all stages of the data lifecycle.

Can I bring my own proprietary data?

Yes, you can bring your own data. The CDN platform can host a variety of data type (video, script, audio, images…) and offer analytics and clinical research workbench and tools.

Datarwe can help you clean and label your data. For more information about this service, you can contact us.

What type of data can I bring?

The CDN platform can host a variety of types of data (video, script, audio, images…).

Who can access my data?

Only the CDN ecosystem participants you choose can access your data.

Where is the data stored?

The data stays within the data providers system. The de-identified data is securely stored in our cloud based platform. The Datarwe Clinical Data Nexus  provides a platform-as-a-service for the secure and privacy-preserving sharing of real-world de-identified clinical data with approved participants. The CDN is implemented and operated with security and privacy baked-in together with comprehensive assurance and governance to ensure patient privacy and compliance with legislative healthcare privacy requirements.

Can I use the data for my research?

Yes, you can. Datarwe connects hospitals, researchers, clinicians and product developers with research-ready, enriched real world clinical data through our Clinical Data Nexus. You can accelerate your research with direct access and exploration of real-world de-identified clinical data.

THE CLINICAL DATA NEXUS PLATFORM

How can I have access to the platform?

Only data providers (hospitals, health providers) and approved data consumer (researcher, clinicians, We follow a strict process ensure only approved participants can access the platform.

Who has access to the CDN platform?

Only data providers or data consumers can access the platform. Data consumers go through a strict and secure process before access the CDN platform. Data providers always have the custodian of their data and can choose who can access it.

How much does it cost?

We have different pricing solution depending on your organisation. We offer plans for individual, start-ups, companies (5 accounts) and enterprises (10+ accounts). If you would like more information about our prices, you can contact us.

PARTNERSHIP

Does Datarwe sell data? Can I buy data?

Datarwe does not sell data. We are hosting de-identified healthcare data from our CDN ecosystem participants. The data providers keep control on who can access their data.

Is my IP secure?

Your answer here

GOVERNANCE/ASSURANCE

How secure is the CDN platform?

The Clinical Data Nexus is a very secure platform. The CDN is implemented and operated with security and privacy baked-in together with comprehensive assurance and governance to ensure patient privacy and compliance with legislative healthcare privacy requirements.

What are the privacy controls?

The CDN consists of controlled environments where data providers (hospitals) host their own data prior to sharing. Within each provider’s environment source data can be extracted, transformed, linked and de-identified.

Once data has been linked and de-identified, data is available for sharing with approved researchers. Data custodians retain full authorisation over data sharing throughout the sharing lifecycle. Researchers only access shared data within secure environments where access has been granted by the provider’s data custodians. Within these environments access is controlled and monitored to provide full transparency and prevent data leakage. Research is undertaken within these controlled environments, without data exfiltrating from the controlled environment.

HREC/HREA/EUREC processes

All studies have to pass formal ethical review. Datarwe can assist you in getting these approvals.